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Gastrostomy Tube Education Services

  • Comprehensive review of your child’s diagnosis and medical history.

  • Personalized in-depth gastrostomy tube education, based upon current best practices for use to ensure the longevity of your child’s device. Includes demonstration, stand-by assistance, and support to ensure your comfort with using your child’s new or established gastrostomy tube.

  • Assistance creating a personalized emergency g-tube kit to ensure you are adequately prepared for accidental g-tube dislodgements.

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  • List of vetted Pediatric Gastroenterologists (if your child is not already established with a Pediatric Gastroenterologist).

  • Collaboration with your child’s healthcare team, including your child’s Pediatrician, Pediatric Gastroenterologist, Pediatric General Surgeon, and other specialists as needed, to ensure communication is maintained and all concerns addressed.

  • Advocate on your child’s behalf in the hospital setting.

  • Support for up to 3 months after discharge from the hospital (or after initial education services are provided).

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  • Assessment and recommendations provided by a registered dietitian to include:

    • Review of your child’s current measurements on growth charts.

    • Type of formula or enteral nutrition specific to your child’s needs.

    • Daily nutritional requirements to facilitate catch-up growth or maintain current growth trajectory. Recommendations will be adjusted as your child grows to ensure proper growth and development.

    • Options for feeding schedules, allowing you to tailor your child’s delivery of nutrition to their daily routine and tolerance of feedings (exp. larger bolus feedings during the day with no feedings at night; smaller bolus feedings during the day with continuous feedings at night; continuous feedings during day and night, etc).

    • Personalized schedule to help transition your child from continuous feeds to bolus feeds (to be used after follow-up appointments with your child’s Pediatric Surgeon and Gastroenterologist. Clearance must be received from both before beginning the transition from continuous feeds to bolus feeds).

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